Sep12
Join us as we advance Community Health Initiatives that close gaps and build equity.   Learn More
Aug20
Join us as we advance community blood drive donation to close gaps and save lives.   Learn More
May12
Joining forces in the Republic of Congo to strengthen systems and advance healthcare.   Learn More
We are thrilled to share an incredible opportunity from our partner, the EveryLife Foundation for Rare Diseases. Living with a rare disease presents unique challenges, including frequent doctor visits, complex treatment regimens, and increased health risks, which can make achieving traditional life milestones, such as pursuing higher education, more difficult. While medical advancements have improved both quality and length of life, financial barriers remain a significant hurdle. To help bridge this gap, the EveryLife Foundation established the #RAREis Scholarship Fund, empowering and supporting adults living with rare diseases in their educational pursuits. Thanks to the generous support of Amgen, 58 scholarships, each valued at $5,000, will be awarded in 2025, easing financial burdens and fostering opportunities for academic and personal growth. We encourage our supporters to apply or share this life-changing opportunity with someone who could benefit. For details and application information, visit the EveryLife Foundation for Rare Diseases website.
Applications will be open from March 18 through April 28, 2026.

This summer, we are proud to advance Community Health Initiatives, a comprehensive effort dedicated to closing health gaps and building lasting equity across Maryland. This equity-driven program delivers critical impact in three key areas: expanding access to preventive care in underserved neighborhoods, strengthening community health education to empower residents with knowledge and agency, and addressing the social drivers of health that place the heaviest burdens on vulnerable families. Through data, partnership, and unwavering commitment, Community Health Initiatives reminds every community that they are not forgotten, and that equity begins where gaps end.
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We are proud to champion the Pediatric Oncology Network, a compassionate mission devoted to surrounding children fighting cancer with comfort, continuity, and unwavering support throughout Maryland. This child-centered initiative creates meaningful change across three vital pillars: providing comprehensive wellness and emotional care that nurtures the whole child beyond diagnosis, equipping young patients with educational tools and tutoring so their futures remain bright even during treatment, and extending direct financial assistance that lifts the crushing weight from families already stretched too thin. Through tender presence, fierce advocacy, and the strength of community, the Pediatric Oncology Network stands beside every child as a reminder that courage is never solitary, and that healing begins when no one is left to face the darkness alone.
Learn MoreThis multi-day event, hosted by the Rare Disease Legislative Advocates (a program of the EveryLife Foundation for Rare Diseases), brings together rare disease advocates from across the country to make their voices heard by their Members of Congress. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate for policy changes directly to their Members of Congress. Beyond legislative advocacy, the event offers interactive workshops and keynote sessions where experts share insights on current and emerging policy challenges. The agenda is carefully designed to ensure that advocates gain practical skills for effective communication with policymakers.
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Round Up for Rare Kids Every day, children in Maryland face the unimaginable challenges of rare pediatric cancers, and their families struggle to find hope and support. Round Up for Rare Kids is a powerful initiative that turns everyday purchases into life-changing support. By rounding up at checkout, you can help fund groundbreaking research, provide critical resources for families, and raise awareness about these devastating diseases. Together, we can bring hope, healing, and a brighter future to children battling rare pediatric cancers, one small act of kindness at a time. Your change can change lives. Whether it's 0.25,0.50, or more, every round-up adds up to make a big difference. Join us in supporting these brave kids and their families. Together, we can ensure that no child fights alone.
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We are proud to champion the Pediatric Oncology Network, a compassionate mission devoted to surrounding children fighting cancer with comfort, continuity, and unwavering support throughout Maryland. This child-centered initiative creates meaningful change across three vital pillars: providing comprehensive wellness and emotional care that nurtures the whole child beyond diagnosis, equipping young patients with educational tools and tutoring so their futures remain bright even during treatment, and extending direct financial assistance that lifts the crushing weight from families already stretched too thin. Through tender presence, fierce advocacy, and the strength of community, the Pediatric Oncology Network stands beside every child as a reminder that courage is never solitary, and that healing begins when no one is left to face the darkness alone.
Learn More