The Petronille Healthy Society is proud to host a State Advocacy Day, bringing together Maryland residents affected by rare diseases to engage with their state legislators, share their personal stories, and collectively advance the policy priorities of the rare disease community. We cordially invite you to join us for this significant event.
At the state level, healthcare policies hold significant sway over the lives of individuals living with rare diseases. They influence critical aspects such as the diagnostic process, treatment accessibility, and overall quality of care. As advocates, it's essential to recognize that one of the most potent methods of influencing these policymakers is through personal, face-to-face engagement.
Joining Maryland's Rare Disease State Advocacy Day provides you with the means to directly shape policies that address the unique needs and challenges faced by the rare disease community. It's an opportunity to translate your personal experiences and insights into concrete changes that benefit all those impacted by rare diseases in Maryland..jpg)
Our giving program is a cornerstone of our mission, dedicated to supporting rare disease patients and underserved communities. We wholeheartedly welcome the support of generous individuals, organizations, and companies who share our commitment to making a positive impact. Through direct donations, sponsorships, and volunteer engagement, our giving program provides crucial assistance to families caring for a loved one affected by a rare disease. Caring for someone with a rare disease can be immensely challenging, and your support through our program bridges the gap between those in need and those with the resources to make a difference, fostering a sense of community and shared responsibility.
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